2005N-0279 Food Labeling; Gluten-Free Labeling of Foods; Public Meeting
FDA Comment Number : EC1448
Submitter : Ms. Cindy Workosky Date & Time: 09/20/2005 06:09:34
Organization : Ms. Cindy Workosky
Category : Individual Consumer
Issue Areas/Comments
My daughter and I have celiac disease and we struggle to get accurate information about food for us to purchase and consume. We desperately need more help from food manufacturers so that we know exactly what is in the food they sell.

Gluten free on a food label MUST mean that it contains no trace of gluten. Otherwise, we will eat contaminated food that will jeapardize our health. This also means that companies MUST know if gluten is in the raw materials they use for their food product. Many companies claim they do not add gluten, but they do not have a clue about the raw materials they use. This is unacceptable.

I spend a tremendous amount of time attempting to figure out what foods are gluten free. My first and most reliable source is the food package. If it claims to be gluten free, I consider it to be totally gluten free. I also spend time calling companies to get their input, and I am a member of CSA and secure their published documents of gluten-free food.

The percentage of foods that I buy that are marked gluten-free is about 40 percent. I wish more companies would note this on their label so I can feel comfortable about the decisions I make for my daughter and for me.

If 'gluten-free' is printed on the label, I am much more likely to purchase it because I feel more confident that it is safe. I consider this the 'gold standard.'

Please help us by making companies tell us what is in the food that they manufacture and sell. We have a right to know and they should be held to higher standards.