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Natural History Grants Program Education and Media Resources

The resources below are intended as educational recordings about Orphan Products Natural History Grant Program.  The table below identifies the intended audience for each of the topics, however these educational resources are meant to serve as a beneficial tool to all rare disease stakeholders.

Recorded Session Topic Patients & Advocacy Groups Research Investigators Drug Developers
Workshop on Natural History Studies in Rare Diseases: Meeting the Needs of Drug Development and Research disclaimer icon 
Numerous Speakers
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Video Discussion on Natural History Studies disclaimer icon(58 mins)

Gayatri Rao, JD, MD, OOPD; Richard Klein, OHCA; Charles "Tim" Frost, Patient, Alpha-1 Antitrypsin Deficiency; Gayle Greene, MSW, Caregiver, Von Hippel-Lindau Syndrome; Theresa Strong, PhD, Foundation for Prader-Willi Research; Andrew Mulberg, MD, FAAP, CDER/FDA; Jonathan Goldsmith, MD, FACP, CDER-Rare Disease Program/FDA

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