2005N-0279 Food Labeling; Gluten-Free Labeling of Foods; Public Meeting
FDA Comment Number : EC791
Submitter : Mrs. Ann Burns Date & Time: 09/13/2005 06:09:06
Organization : CSAUSA
Category : Food Industry
Issue Areas/Comments
GENERAL
GENERAL
Having Celiac disease is NOT a pleasant experience. EVERY label MUST be read to try to determine if wheat, oats, rye or barley in any form may be included in the product. It takes hours to shop for foods and as a result, most celiacs end up eating the same identical foods over and over. Of the FEW manufacturers/vendors who label their product as being "GLUTEN FREE", they are appreciated beyond words for doing so. And as the population of celiacs grows, so grows the need for GLUTEN FREE foods. Celiac is a SERIOUS condition.
Prior to being diagnosed almost 10 years ago near my 59th birthday, in a period of 6 weeks, I lost from 152 pounds down to 123 pounds because of this condition. Celiac and GLUTEN almost KILLED ME! Serious? YOU BET YOUR LIFE! I have a son who was recently diagnosed and a daughter who I suspect is a celiac. Anything the FDA can do to increase the number of products that are properly labeled "GLUTEN FREE" will be much appreciated. A product that states it contains "modified food starch" is suspect to the point that a celiac cannot and will not use it unless it states that it is modified with Corn or rice. Let us not forget, wheat is the major grain involved, but Oats, Rye And Barley are just as dangerous to those of us who have this intolerance to gluten.
Ann L Burns