2005N-0279 Food Labeling; Gluten-Free Labeling of Foods; Public Meeting
FDA Comment Number : EC1242
Submitter : Mrs. Peggy Lescher Date & Time: 09/20/2005 05:09:55
Organization : Mrs. Peggy Lescher
Category : Individual Consumer
Issue Areas/Comments
GENERAL
GENERAL
My adult son has Dermatitis Herpetiformis which is the skin manifestation of Celiac Disease and which has the same medical consequences of Celiac. Therefore, he must follow a Gluten Free (GF) diet. This diet is very difficult to follow as there are so many food terms one must watch for when shopping. For example,Hydrolyzed Vegetable Protein included in many products can sometimes contain Gluten. Also he can have Apple Cider Vinegar, but not Distilled Vinegar. If a product is labeled merely Vinegar, we must call the company to find out which kind. My daughter- in-law often calls 800 numbers from the grocery store to ask if an item is Gluten Free. Much time is spent shopping. There are a limited number of items available in a few markets marked Gluten Free, but many items must be ordered from Internet web sites. The question was asked about tomato sauce---whether a Celiac would be more likely to buy a can labeled GF over one with the same ingredients not marked GF. Yes, because the shopper would not have to take the time to read the label and make sure there were no hidden glutens listed. To be marked GF the product should be totally GF rather than just have tiny amounts of gluten. I am not a health care professional who can give a technical description of this disease and the effects of Gluten. I am just a Mother who struggles with preparing GF meals for my son when he visits. Those of us who are affected in any way by this potentially devastating disease, encourage the FDA to be aggressive in requiring GF labeling mandatory.