2005N-0279 Food Labeling; Gluten-Free Labeling of Foods; Public Meeting
FDA Comment Number : EC1039
Submitter : Ms. Melonie George Date & Time: 09/20/2005 03:09:25
Organization : Parent of Celiac
Category : Individual Consumer
Issue Areas/Comments
GENERAL
GENERAL
As in my prior advocacy regarding Docket 2005N-0279. I must stress that for suffering CELIACS that are unable to find proper nutrition and food for health and maintanance of proper health. Especially for young children diagnosed or undiagnosed for years during the crucial growth years. When it comes to the level definition of gluten presence. I suppose I would not object to 2 or more gluten-free labeling definitions as long as it is clearly mandated that the level be defined and properly 'consumer friendly'. Already, a parent of a Celiac must pretty much be a nutritionist expert, in which I attend to pursue as a career (Registered pediatric dietician) in order to help other parents and children in this situation. My daughter had all the classic signs and symptoms as an infant but medical ignorance delayed her diagnosis. I feel also that Celiac blood testing should be as routine as the PKU testing done on infants, sighting the fact that 1 out of 133 people are afflicted with this disease. Poverty and missunderstanding just exacerbates the damage of those afflicted. Since I do understand that there are those that have a minor case of Celiac Disease, people and children with the same severe case as my daughter suffers, need to know for sure just what 'definition' of gluten free food to purchase for health maintanence. I of course would only purchase those labeled with the Level A definition. 100% gluten free, manufactured in a 100% gluten free production plant. PEOPLE ARE POISONING THEMSELVES BY INGESTING TRACE AMOUNT OF GLUTENS WITHOUT EVEN KNOWING IT, EVEN WORSE, IMAGINE YOU ARE THE PARENT ACCIDENTALLY, INADVERTANTLY POISONING YOUR OWN CHILD DUE TO MISLEADING AND FALSE PRODUCT LABELING. LEVEL A: Seems like the best choice for everyone, however like I stated, I am aware that adults know, usually more than children in my daughters situation, just how much gluten their bodies are able to handle. Celiac Disease is not something you outgrow. My daughter faces irreversable digestive damage, possible mental retardation, emotional growth retardation, the cancers that seem to afflict this isolated population, infertility and it is unknown whether or not she will be able to recover from the effects of 5 yrs of Gluten intake when she had the most severe form of Celiac Disease. I only wish I had on my computer a downloaded picture of my beautiful Mattea. Then you could put a face to the innocent out there that have been victims of an ignorant medical community and false and misleading advertising by food manufacturers.