Table of Contents
PEDIATRIC ETHICS AND CHILDHOOD CANCER RESEARCH
PPT Slide
PEDIATRIC ETHICS
Principles of Medical Ethics
The Geometry of Pediatric Ethics
Two Questions in Pediatric Ethics
Informed Consent vs. Parental Permission
Parental Permission
PROXY CONSENT
Informed Consent in Pediatrics = Parental Permission + Assent of Child
Assent: A Clinical Definition
Assent: A Clinical Definition
Assent: A Research Definition
Assent: Clinical vs. Research
Informed Consent Data*
DECISION MAKING PREFERENCE:
DECISION MAKING PREFERENCE:
Parent Questions by Race and Social Class
Log of Parent Questions by Race and Social Position
THE NUREMBERG CODE
Can we adhere to Nuremberg and do pediatric research?
How can we respect Nuremberg and do pediatric research?
Approvable Research: 4 categories:
RESEARCH ETHICS:
PEDIATRIC RESEARCH ETHICS:
PHASE I ONCOLOGY RESEARCH IN CHILDREN
OPTIONS PHASE I ALTERNATIVE HOPSICE MEDICINE CARE
OPTIONS (pathways to hope??) PHASE I ALTERNATIVE HOPSICE MEDICINE CARE
PHASE I ONCOLOGY RESEARCH IN CHILDREN
ALTERNATIVE MEDICINE
HOSPICE
PHASE II WINDOW DESIGN
CONCLUSIONS
Children are both vulnerable subjects in need of protection from research risks and a neglected class that needs better access to the benefits of research.
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