PEDIATRIC ETHICS AND CHILDHOOD CANCER RESEARCH

11/30/01


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Table of Contents

PEDIATRIC ETHICS AND CHILDHOOD CANCER RESEARCH

PPT Slide

PEDIATRIC ETHICS

Principles of Medical Ethics

The Geometry of Pediatric Ethics

Two Questions in Pediatric Ethics

Informed Consent vs. Parental Permission

Parental Permission

PROXY CONSENT

Informed Consent in Pediatrics = Parental Permission + Assent of Child

Assent: A Clinical Definition

Assent: A Clinical Definition

Assent: A Research Definition

Assent: Clinical vs. Research

Informed Consent Data*

DECISION MAKING PREFERENCE:

DECISION MAKING PREFERENCE:

Parent Questions by Race and Social Class

Log of Parent Questions by Race and Social Position

THE NUREMBERG CODE

Can we adhere to Nuremberg and do pediatric research?

How can we respect Nuremberg and do pediatric research?

Approvable Research: 4 categories:

RESEARCH ETHICS:

PEDIATRIC RESEARCH ETHICS:

PHASE I ONCOLOGY RESEARCH IN CHILDREN

OPTIONS PHASE I ALTERNATIVE HOPSICE MEDICINE CARE

OPTIONS (pathways to hope??) PHASE I ALTERNATIVE HOPSICE MEDICINE CARE

PHASE I ONCOLOGY RESEARCH IN CHILDREN

ALTERNATIVE MEDICINE

HOSPICE

PHASE II WINDOW DESIGN

CONCLUSIONS

Children are both vulnerable subjects in need of protection from research risks and a neglected class that needs better access to the benefits of research.

Author: Preferred Customer