Other Resources

Government Agencies:

• National  Institutes of Health Office of Rare Diseases Research

• National Institutes of Health

Patient Advocacy Groups

• National Organization for Rare Disorders (NORD)
• Genetic Alliance

Join the OOPD Listserv and receive information by e-mail

Subscribe to the FDA orphan Products information listserv and receive relevant Federal Register notices, up-to-date lists of orphan designations and approvals, and newsworthy items of interest to the orphan community. (Please note: The National Institutes of Health maintains this listserv on behalf of FDA.)

To join, click on Orphan Products Information Listserv